Susan left a message for me today at 10:45 a.m.
She said that last night David had a really rough time from 4:30 to at least 7:00. They let her stay in a little bit after 6:00 p.m. (during the shift change) and also let her come back early to get the update. (Remember that they're not supposed to be able to see David from 6-8, morning and night, during the shift changes).
They had tried to wean David off the nitric oxide last night. Normally, a baby's body will show signs of still needing it, but David's didn't and just kind of freaked out. His stats dropped, they couldn't get them up, and they had his oxygen up at 100%, so they turned the nitric oxide back on.
The nitric oxide keeps David's pulmonary vessels (the blood vessels going to his lungs and that whole area) expanded and helps blood and oxygen to flow through. His little body didn't want to be weaned off it yet; he still needed the nitric oxide.
They did a chest x-ray and there was room for his lungs to be expanded, so they turned up the oxygen, the nitric oxide, and the pressure and put him on his tummy. He did a lot better after that.
He was so unstable last night that they held off on his 5 p.m. feeding. Before that, his feeding amounts had increased. From 8 ml, he got 9 ml at 2 p.m., he was supposed to get 10 ml at 5 p.m., but they held off. They were, however, able to feed him 10 ml at 8 p.m. He has been getting 10 ml ever since. (When we started this blog, he was only taking 3 ml!)
Susan got to be with him last night. After she left, she called for an update at 9:45 p.m. and had a conversation with Dr. Palmer that was very sobering. He said a couple things that are eating away at her faith a little bit.
The doctor said, "You know, he's still a sick little boy. It's amazing that many babies have already declared horrible lung disease by now or their lungs have collapsed by now and David's haven't . . . He hasn't shown signs of pneumonia (yet) . . . It's hard because you call in and we tell you it's a good day, but it's a good day because he's still with us."
The doctor said they could try steroids to help his lungs develop and mentioned the potential risks involved, but that isn't something they normally try until babies are at least one month old.
The other thing that concerned Dr. Palmer was that any time they do little changes, it causes big changes in David, which is not good.
While she was talking to the doctor, they were able to get David's oxygen back down from 88 to 84. Dr. Palmer said he'd be happy with 80. The nitric oxide was back up at 10 last night and the plan was to slowly wean him down to 5 again.
That was last night.
This morning's assessment:David's temperature is a little elevated at 99.7. They think it's because of the bed temp, so they're turning that down. Hopefully that will help.
He's on his back instead of tummy with no sedative, which is good. They're trying to change positions since his head is starting to develop a flat spot on the left side.
They got his pressure turned down to 9.0 and he had an x-ray today but Susan' didn't have the results yet.
His blood pressure reading was good at 39.
There was a bit more, but I lost it. I'm so sorry. The message was inadvertently deleted when my cell phone lost signal twice. Since I have to play each message multiple times to get all the details down, I have to be careful to hit 4 to repeat instead of 7 to delete. Also, I'm often interrupted by my sweet small children (although I try to do most of the writing when they're napping or in bed), calls coming in, phone signals dropping, etc.
Please pray for technological angels to war in the heavenlies on behalf of clear communication!